![]() ![]() What an organisation must not do with the data:ĭata cannot be used in any way to re-identify an individualĭata cannot be linked with any other data, unless explicitly approved in the applicationĭata cannot be passed to any third parties, unless explicitly approved in the application The data security requirements that must be followed When and how data must be destroyed after use The purpose for which the data can be used What does a data sharing contract include? This sets out strict rules about what an organisation can do with the data, and has clear restrictions on what is not allowed. The Independent Group Advising on the Release of Data (IGARD), NHS DigitalĬonfidentiality Advisory Group, Health Research AuthorityĪ legal contract must be signed before data can be transferred or accessed. These requests are reviewed by the Confidentiality Advisory Group. There are extra controls to access personally identifiable information where it is not possible to ask consent. ![]() Research applications will usually be reviewed by an expert independent scientific committee. There are three things that will be checked: Organisations that look after patient data will have a clear review process to ensure data is only used appropriately. It can only be used if you give your permission or where required by law, and then only with robust safeguards.Īny request to use patient data should be assessed by an independent review committee, who check that the reason for using the data is appropriate. If it is not possible to anonymise the data, there are strict controls on how personally identifiable data can be used and stored. What if it isn’t possible to anonymise the data? Anyone wanting to use patient data will only be given the minimum amount necessary to answer a question. The best way to protect someone’s information is to remove details that identify a person and take further steps to ‘anonymise’ it. There are four ways that your privacy is shielded: by removing identifying information, using an independent review process, ensuring strict legal contracts are in place before data is transferred, and implementing robust data security standards. ![]()
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